Anencephaly Resources and SupportAnencephaly is a congenital birth defect, this means that your baby’s brain will not fully develop. While the mother is pregnant, baby can continue to grow and develop but necessary functions can’t continue for very long after the baby is delivered.
Many anencephaly babies live through pregnancy to birth, some die during delivery and many others are born before due date resulting in stillbirth. The babies who make it through delivery may live for a few seconds, minutes and possibly a few days.
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Every life matters, no matter how long...Anencephaly is a fatal condition. Unfortunately, there is NO cure…
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The below compilation of resources has been carefully chosen to help provide guidance and support through whatever situation you may find yourself in. These should in no way be used in place of medical advice but are provided to supplement your healing journey.