Reflections
My Chiari Story
If you’re wanting to learn even more about Chiari visit the sites below:
National Institute of Neurological Disorders and Stroke
Conquer Chiari
Mayo Clinic
“Vilomah" a name for parents whose child has passed away….
I am the mother to an angel. At the young age of 21, my husband and I lost our stillborn daughter. Her loss took us through the darkest periods of our life yet we are here, we don’t have all the answers but we have lived through the first few years of grief and am still making it day to day. My hope is that I can provide some little piece of comfort or support to another mom, another dad, another family member who finds themselves going through a difficult situation. We want our daughter to be remembered and we wanted to honor her memory by helping other families.
September is Chiari Malformation Awareness month, I'm taking a break from my "normal" posts to help spread awareness about chronic illnesses, especially Chiari Malformation. These invisible disorders are hard to cope with, hard to live with and unfortunately, are often ignored by the friends and family who should be there when they are most needed. A few months back, I wrote a post for Columbia City Moms Blog about my experience with living with a chronic disorder. In this post, I talk about the lessons I have learned along my journey, read the full story here. See past blog posts about my story:
Reflections My Chiari Story If you’re wanting to learn even more about Chiari visit the sites below: National Institute of Neurological Disorders and Stroke Conquer Chiari Mayo Clinic
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Author:Just a girl, a wife, angel mother and friend... An infant loss parent, post menopausal 20 something year old and brain surgery survivor...I've been through alot and have a lot to share! Popular Posts
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